Save the date for the most inspirational and festive fundraising gala of the year! May 30th, 2025 at Club Sur, Seattle, WA Check out the...

Just recently, the paper titled Loss of function of FAM177A1, a Golgi complex localized protein, causes a novel neurodevelopmental disorder.

Cláudia Carvalho, PhD, joins the FAM177A1 Research Fund Scientific Advisory Board

The FAM JAM event was a spectacular night, raising $250,000 for the FAM177A1 Research Fund

Our oldest son Nash just started his freshman year at the University of Utah. We are from Seattle. Nash's roommate Zack is from Bar...

Jill Hawkins, Founder and President of the FAM177A1 Research Fund, had the honor of speaking with Dr. Marc Gas from Biorosi, on Episode...

FAM177A1 was the star of the show during the March 10, 2022 UDN Grand Rounds. Jennefer Kohler, Genetic Counselor from the Stanford Center...

After 16 years of not knowing another person in the whole world with our children’s diagnosis, we finally met another FAM177A1 family...

A story titled FAM177A1: Two Siblings' Ultra-Rare Disease Odyssey was published in The Mighty on January 4, 2022. You can read it here. ...