top of page

Scientific Advisory Board

We are honored to be guided by a brilliant and devoted team of gene and rare disease experts.

Claudia Carvahlo headshot_edited.png

Cláudia M.B. Carvalho, PhD

Assistant Investigator

Carvalho Lab

Pacific Northwest Research Institute

  • Grey LinkedIn Icon
D74F1DEE-229D-4915-A4F0-C7DDE8BB9D88_1_105_c.jpeg

Dr. Ghayda Mirzza

MD, Geneticist & Researcher, Seattle Children’s Hospital

  • Grey LinkedIn Icon
liliana.png

Dr. Liliana Solnica-Krezel, PhD

Professor and Head of Dev Biology,

Washington University School of Medicine, St. Louis

  • Grey LinkedIn Icon
Park Small Small.png

Cindy Lawley

Senior Director,

Global Population Health

Olink Proteomics

  • Grey LinkedIn Icon
jocelynnpearl-headshot-2022.jpeg

Jocelyn Pearl, Phd

Director of Cancer Cell Therapy, The TAM Center 

  • Grey LinkedIn Icon
Jimann-Shin-Headshot-resized.jpg

Jimann Shin, PhD

Genome Editing Technology Expert, Washington University, St. Louis

  • Grey LinkedIn Icon
9DB3E5BE-398E-45A5-9EAF-611D538281DF.jpeg

Berrak Ugur, PhD

Associate Research Scientist in Neuroscience, Yale University

  • Grey LinkedIn Icon
charlessteward.png

Charles Steward, PhD

Head of Patient and Participant Engagement, Genomics England

  • Grey LinkedIn Icon

Our Partners

Research and Industry

Citizen Health_Dark.png

Advocacy

CombinedLogo-color(1) (3).png
REN logo small.webp.jpeg
Partners

FAM177A1 Research Fund

info@fam177a1.org

A 501(c)(3) nonprofit corporation

Tax ID: 87-3607948

  • Facebook
  • Instagram
  • Twitter
FAM177A1 Logo Translucent.png

The information provided on this website is not intended to diagnose or treat a disease or disorder. Please direct any medical-related questions to your physician. The FAM177A1 Research Fund is not responsible for any errors or omissions on this website.

bottom of page